Parkinson’s Disease:
Guidelines for End-Stage Parkinson’s Disease & Related Disorders

LIFE-LIMITING CONDITION AS EVIDENCED BY:

• Medications and treatments are generally no longer effective.
• Decline in ability to move, speak, or participate in activities of daily living (ADL) such as bathing, walking, preparing and eating meals. They may spend more time confined to a chair or bed, or completely bed or wheelchair bound.
• Experiencing symptoms of the final stages of Parkinson’s.
  • Difficulty breathing, even at rest.
  • Inability to eat or drink sufficiently and exhibiting weight loss.
  • Exhibiting other complications including pneumonia, sepsis, pyelonephritis,
    decubitus ulcers, or other comorbidities.
• Have received a life-expectancy of six months or less from a doctor.

HOW WE HELP — END-STAGE PARKINSON’S DISEASE:

• Manages pain, symptoms and anxiety associated with end-stage Parkinson’s to improve quality of life for the patient and their loved ones.
• Provides emotional and spiritual care thereby providing a whole-body approach to care.
• Provides clinical team support 24/7 – nights, weekends, and holidays.
• Provides education and support for family caregivers.
• Arranges for additional medications, supplies and equipment associated with the hospice diagnosis to be delivered.
• Coordinates care with all the patient’s healthcare providers.
• Assists in documenting an advance healthcare plan.
• Offers continuity of care if pain and symptoms cannot be managed in a residential setting in its home-like inpatient hospice care centers – available exclusively to our patients.
• Offers continued grief care and support for loved ones after death.